May - 2017

Holiday weekend

This past holiday weekend, we had friends in town. Weekends with company have become part of our "normal," so it was exciting after so...

I knew it had been a while since posting an update, because we started getting texts! Not that we don't normally get texts, but "how are...

To start, we are home! We got home around 11:30 this morning, and our at home respiratory therapist spent a few hours here getting us...

Today, stitches got removed from the trach site. The tidal volume (normal volume of air displaced between normal inhalation and...

We had another good day today. This morning, a barium swallow study was completed. We went down to x-ray to complete this study. This...

Today ended up being a great day. At 2am, they did a chest xray that looked great....hospitals run 24 hours and 2am is the perfect time...

Brittany, NP came by in the morning and "deflated the cuff" of Jason's trach. AND...he is able to talk! His voice is stronger than...

It was very nerve-racking to have little time to prepare for reality that we needed to go ahead with the tracheostomy procedure to help...