Blog | JJJourney

Celebration of Life and After

This video was shown at Jason's Celebration of Life Service in Windham, Maine on Friday, September 28, 2018. Credit to my friend, Bonnie...

Last night I had a dream. Let me preface this with saying the way I have had to alter my sleep, I have not had more than 6 dreams that I...

I just wanted to write a quick update after the news has settled in for everyone that reads the blogs. (and clear up a few things that...

It hurts almost as much to type this as it did that afternoon. After the chest tube was placed on Thursday, July 26, our lung team nurse...

Mid week, around July 17, Jason had not been feeling well for days. He was getting really anxious with each (twice a day) nebulized...

It has been 6 weeks since the previous trach change. The lung team wants to keep these appointments more frequent than every 3 months...

This appointment was scheduled only 2 months after the last (April 21) because we didn't want to wait too long to check Jason's weight...

Who would have thought when diagnosed with ALS that our dreams of parenthood would actually happen? What a blessing Miss. Annalise...

Our baby girl was born at 6:43am on June 7, 2018. She weighed 7lb and 4 oz and was 20 1/4 inches long. She has a full head of dark...

Since the end of April, many things have happened as far as Jason's health. Just like after the set of "bad" appointments in December...